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You can lead a wheelchair to water, but…..

Jewish Disability Awareness and Inclusion Month – Spotlight 2, Michael Pucci
You can lead a wheelchair to water, but…..

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Growing up in the Pucci house, my physical disability was mostly invisible to my family. My parents’ expectations of me were no different than their expectations of my sisters and brother. Society was a whole ‘nother story. In the world outside my front door, the more physically different an individual was the more “different” they were treated. That was my mindset as well. So, ultimately, I endeavored to be as “normal” as possible. The same could be said for most of my peers with physical disabilities; we strove to “fit in.”  On one hand, the effort was doomed to failure… it’s beyond hard to hide 2 crutches and an obvious limp. On the other hand, it was, for me at least, a journey to self-discovery. I’ll spare you from the story of that journey… for now.

To come to the point of this piece, there are some residuals to spending a big chunk of time trying to “fit in” and be “normal” and some of those residuals are not so positive or inspiring. Over the years, I’ve done a lot of work on letting folks help me. I didn’t start out being so accepting of help as I am now. In my early years, my father could expect some very sharp teeth digging into his arm if he made the unwise decision of trying to carry me someplace rather than waiting the near eternity of letting me get there on my own. When I lived in Boston for school, my girlfriend lived at the top of Beacon Hill in a 4-floor walk-up. Most days, when I finished my shift as a pharmacy internal at Mass General, I’d walk up. Some days I let her carry my backpack full of textbooks… some days not… and never if she asked if I needed help. Hara, my patient wife, had to learn the same hard lesson. After a long day of visiting family or friends with our toddler, Greta, it was MY JOB to carry everything into the house no matter how many back-and-forth trips or how long it took. With Hara being Hara, it took a long time for her to get past her compassion and learn not to ask if I needed help.

Over the years, I’ve aged…surprise, surprise! With age my mobility has decreased a bit (or more) but, more importantly, I’ve come to the realization that embracing help when offered (whether I need it or not) gives me something much more important than some fallacy of physical independence. Allowing another, especially someone I love, to help me reaffirms my connection to my family, friends, community or the good Samaritan (I know that’s the other religious tradition…but you get it, right?). These connections with others bring me happiness, gratitude for their caring, contentment that I’ve helped another feel good about themselves and a truer sense of “fitting in” to the human family than I could ever get from looking and moving “normal.”

There are those times though… I’m human, I fail, I fall short. In my family, we have a Christmas Eve tradition of meeting all the Hartmans (my in-laws) for dinner at a kosher restaurant in NYC. This year, the night was unseasonably warm and dry. Some rain earlier in the day had cleared out. The parking near midtown was typically tricky so we had several blocks to traverse to get from our parking garage to the restaurant. Our start into the city from home was typically late so we were in a bit of a rush. It’s those times when I’m a bit stressed that the young boy with sharp teeth comes back. I was going to set the pace and it would be brisk. I was going to push the wheelchair myself. Well, I should have thought that one through. The second curb that we came to was hidden under dark puddle of rain water… at least I hope it was rain water. I approached at “lift off” speed. Unfortunately, my wheelchair didn’t “lift off” … the wheelchair stopped cold. You know what else was cold? The water was cold! I know because I bounced out of my wheelchair and was sitting in that puddle and soaked to the skin. My wife and a kind stranger helped me back into the wheelchair. I hadn’t learned my lesson yet though. I was still intent on pushing myself. That wasn’t the last time I fell out of my wheelchair that night…twice more. I was very stubborn; I was very wet; I was very cold. Ever sit through a 2-and-a-half-hour dinner with wet pants? After you were three years old? That was a 4-scotch dinner. The story I tell now has Hara pushing me into the puddle and trying to drown me for the insurance….

As Bruce Wayne’s father said to him, “Why do we fall…? So we can learn to pick ourselves up” Forgive me for having the audacity to think I could improve on Thomas Wayne’s quote… “Why do we fall…? So we can learn to accept the blessing of help from others.” But you should still watch out for the sharp teeth.

I’ve enjoyed telling you this story. I hope you’ve found it fun and amusing. It’s true in all its absurdity but I would be remiss if I didn’t add a serious aside. The blessing in allowing someone to help me is only fully realized by me when I am confident that I could achieve the same physical result without help. In other words, if physical barriers exist to my access to a place that I reasonably want to go on my own (i.e., reasonable means not necessarily access to the peak of Mt. Everest) and the place is accessible to the average Joe, my joy and fulfillment are diminished. It’s complicated, I know….

Michael Pucci

Jewish Disabilities Awareness – Spotlight 1

This is the first in a series of email blogs from folks who have a story to tell about the challenges and experiences of dealing with physical disabilities daily. We hope that through these stories we can show our families, friends and community that, while we deal with physical challenges every day, they don’t set us apart; they can bring us together. The human condition places challenges to overcome for all of us whether they are physical, emotional, psychological or spiritual.
If you are reading this blog and have a story of your own to tell, PLEASE write it down and send it to michael.pucci.phd@verizon.net.  We would be thrilled to include your story along with ours. If you have questions, you can email the address above or call Michael Pucci (914 262-1354).
Thank you to Allen Levinson for our first spotlight:
How I deal with blindness
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As many of you know, I lost much of my vision 6 years ago. Since then, I have often been seen with a smile, working hard to invent and perfect “blind guy tricks.” The tricks are merely ways to maximize the use of my senses, as well as my memory and common sense, to help me “see.” This challenge is quite great, but I am able to work on it 24/7, and that’s what I do.  While my vision is severely impaired, I do have the ability, when the light is right, to see shadows, or silhouettes. That is why my sunglasses are always with me and used whenever I think they might be helpful. I lack central vision but my peripheral vision is often somewhat useful, though relying on it is very exhausting. Keeping my eyes closed for a period of time, or just a short nap, provides a respite from the persistent battle with eye strain.

To grapple with my limited visual world, I make greater use of hearing and touch, and occasionally, even a bit of sight. While many people presume that blind people have enhanced levels of these senses, that is often not the case for me. My tricks using these other senses are successful because of my increased focus, not greater capability. Some of these skills develop through instinct, more through notable attentiveness. Listening for sounds is important. Individuals have different footsteps. Among those with leather soles, men are always heavier- sounding than women, and children are in a class by themselves. If I hear you walk on a hard floor first thing in the morning, I’ll probably recognize you at lunch time. Rubber soles? Forget about it.  Voices and speech patterns are also clearly distinctive. If you introduce yourself to me often enough, eventually, I recognize your voice; a pleasant thing for both of us.  One of my new mottos, pertaining to the fact that I cannot, with confidence, discern the words or symbols “Men” or “Women” on a restroom door, is “thank God for urinals!” 😉  In fact, finding the restroom is at times a bit of a challenge, especially in a place where I have never been before. Even though there are many amusing stories about my escapades finding the right restroom, the question “Where is the restroom?” is easily answered by plenty of friendly waiters who are happy to direct me. Good luck asking the ensuing question on the return trip- “Where is my table?”! The important thing to remember, I’ve learned, is always look around and count the number of tables along the route to the restroom. Counting is always a very important tool.  Most notably, counting the number of steps on my way up a staircase and remembering that number on my way back down, is a great way to help keep me on my feet. If my companion leads, counts, and announces the number of steps, that is truly, as long as it is precise, very helpful. Another strategy that often leads to amusing outcomes is using my sense of touch. For example, it is not unusual to see me tapping my fingers around on the dining table until I find the salt shaker. Touch, in circumstances like this works quite well.  I’ve learned however, that an important area in which I can get in trouble using this technique is when “looking” at a woman!  😉   I can go on and on with anecdotes; hopefully, you have gotten at least a bit of the picture.

So, how can you be most sensitive to my needs? I think that the following observation applies to most all physically challenged people: remember we all want to work on our feelings of independence. Saying “Can I help you?” is always a thoughtful thing to do. When you hear “no” in response, don’t push. On some occasions, I don’t just say “no,” but rather “I don’t know,” followed by “if I can do it myself, I’d much prefer that. If I find I need help, I’ll ask you.” You can always help me most by using words, not by grabbing or otherwise touching me to guide me, and remembering that your words should not include gestures. “Over there” is rarely helpful. “Watch out” or “look out,” are for obvious reasons, not useful phrases when communicating with me. I feel least “exceptional” when I can be most like everyone else.

Thanks to all of you for your support and understanding. It is truly a mitzvah.
Wishing for all the best for all of us,
Allen Levinson

Leading a faith community

The traditional names for the synagogue–beit knesset, beit tefilah, beit midrash–connote a house of assembly, a house of worship and a house of inquiry and learning. These days, the synagogue is also considered the center of a faith community.

What does it mean to me to be a faith community? It means collectively embracing a hopeful and optimistic view of the world, where faith in God, in people, and in the potential Godliness of every person shapes values, morals and personal choices. In keeping with the ethical codes of our sages, it means giving others the benefit of the doubt without taking unreasonable risk to one’s own well being.

Judaism’s prophetic tradition envisioned a world order where all people would ultimately see God as one and recognize one another as the creation of that one God. In post-Biblical times, this vision of an era to come (olam ha-ba) was transformed into an other-worldly vision, one that could only arrive through divine intervention. Some even embraced the idea that a super-human or semi-divine figure would be needed to bring about this new world order.

Our sages of Rabbinic Judaism brought us back to our emphasis on human agency. We don’t rely on divine fiat to bring about the days of the era to come. Our messianic age is not ushered in by God, but by those of us here doing the work of God.

Israel and America are two potential entities through which this new world order can be brought about. There is nothing wrong with America or Israel wanting to put themselves “first” in this new order, so long as being first doesn’t mean being exclusive. Being first in this order means leading the way for all of humanity to ultimately be a part of the same vision, the same order. If I am first, and no one is following, then I am also last. Isolation and exclusivity did not fit with the prophets’ notion that Judaism’s values would serve as a light drawing humanity to unite as one.

As a leader of a faith community, I will continue to have faith in God; in people; and in policies that move us closer to a world order where all people search for the image of God in others. Our assembly, our worship, our inquiry and learning all point us in this direction as a worldview. Your vision of where we need to go as a society, as a country, as a world or as Jews may differ from mine; but as someone (who doesn’t see the world as I do) recently told me, I must speak the words that are in my heart. They are the wisdom of my experiences and my truths, and my responsibility to espouse in leading a faith community.

I don’t seek to be political in my views or to take sides. Different times demand that different values be prioritized and championed. I will speak out against Islamic fundamentalism that threatens my security and I will call out Jewish fundamentalism that chips away at my identity. I will warn against Islamophobia and I will defend against anti-Semitism. I will advocate for the rights of women to control their own bodies and I will demand the need for people to make responsible choices. I will educate for Jewish continuity and I will explore new ways to welcome interfaith households. I will support the rights of countries to protect their citizens, and I will march to demand the protection of the stranger, the vulnerable and those who can’t protect themselves. I will teach towards a greater awareness of the needs of people with disabilities and I will push for us to see one another as people first. I will own responsibility for my actions and I will accept the collective responsibility we have to our neighbors.

These are the values, among others, that I believe our faith community must advance in moving our world toward a better era for humankind. May that time come soon and in our day.

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Shabbat shalom,

Rabbi Craig Scheff

I am one of four

I am one of four, the third of four to be exact. Being one of four is part of the way I see myself in the world, a central component of my identity and the way I have come to understand people and relationships. My mother is the oldest of three. Her place as the firstborn sibling to a younger brother and sister has shaped her sense of responsibility and the ways in which she derives satisfaction and meaning in the world.

A few weeks ago, my mother lost her younger sister. My aunt Debbie was much more than that to us all. As one of my sons phrased it, she was his grandmother-once-removed. Despite the loss, my mother will always be one of three.

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The shiva period afforded siblings and cousins the opportunity to reunite in appreciating the many blessings that come along with being part of a big family. In one particular conversation, my first cousin-once-removed (that’s my mother’s cousin) shared with me that, despite losing a younger sister decades ago, she describes herself to this day as one of four when asked about her family.

As the narrative of Joseph and his brothers builds towards its climax, Jacob, facing a famine with no end in sight, sends his ten older sons to Egypt for food. Joseph, the vizier in charge of dispensing rations, recognizes his brothers and decides to test them, accusing them of being spies. They respond in one voice: “We your servants are twelve brothers, sons of one man in Canaan; the youngest is with our father, and the one is not” (Genesis 42:13). Leaving aside the fact that the brothers exclude their sister Dinah (a topic for another blog), the brothers see themselves as twelve; it is their identity, even though their brother Joseph has been absent for years and they have passed him off as dead.

In speaking with people who have lost a child, I have learned that parents will often shape answers to questions about their families based on what is most comfortable for them in the moment, on who is asking, and on whether they feel like engaging about their loss. No matter the public response in the moment, these parents count their deceased children as part of the family, still shaping the identity of the family unit.

Such is the nature of memory in the Jewish tradition. In times both happy and sad, we strive to keep the souls of our departed loved ones as a presence in our lives—shaping our identities, defining our priorities, inspiring gratitude for the gifts we possess that can never be taken away.

May our memories of our loved ones be for a blessing to us,

Rabbi Craig Scheff

OJC Israel Experience 5777, Day 3 – A community is revealed

Our Day 3 experience kicked off in the early morning with a prayer service at Azarat Yisrael, the portion of the Kotel that our community calls home. Eliana Pressman, our Bat Mitzvah celebrant, led us in prayer, read from the Torah, and taught us about treating people according to their needs. Her words were a fitting lesson for a day of meeting others’ needs. Amidst so much celebration (the naming of a 3-month old girl in absentia; conferring a Hebrew name upon Jack and Janet Miller’s granddaughter Julia; Marvin Shapiro’s upcoming 90th birthday; Michael and Bryna Schoenbarts’ 35th anniversary; and Mark Katz’s birthday), we had reminders throughout our day that the best way we can show our gratitude for blessings is by being there for others in need.

Today we marveled at the majesty and mystery of Jerusalem’s holy sites and history. We walked the length of the Western Wall underground, appreciating the architectural feats of 2 thousand years ago in the construction of mikvahs, cisterns and towering walls.

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It was the simple acts of kindness, however–literally raising up the fallen, celebrating special moments in life’s cycles, restoring lost items, comforting the bereaved, and feeding the hungry–that truly made this day what it was.

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Today, our group of pilgrims and tourists became a community.

As I hand over the group to Rabbi Drill after Shabbat, I am so comforted by the knowledge that a new community within our community has been born. Thank you, God, for giving us life, sustaining us, and bringing us to this moment in time.

Rabbi Craig Scheff

Israel Experience 5777, Day 2

Shalom me’Yisrael!

Our flight brought us into Ben Gurion this morning just after 9am, Israel time. After collecting our bags, we paused to consider whether we would be taking in the next week as pilgrims or as tourists. It didn’t take us long to get “down and dirty” (so much for being tourists!) as we visited the landscape of the Bible at Ne’ot Kedumim. Our ancestors’ stories came to life as we drew water from the ancient cisterns and crushed olives to make oil. As we herded sheep and reflected on the challenges we faced, the words of Psalms became part of our lesson on leadership, responsibility and compassion. I’ll never read “The Lord is my shephard” the same way again.

 

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Next stop, lunch. And with Chanukah Eve approaching, it is far more likely to find these tasty delights in storefronts, as opposed to tinsel. They seem to be everywhere food is found, and they are called SUFGANIYOT! They are a thick and cakey version of the doughnut, and they are wildly decorated to flavor.

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It wasn’t long before we were eating again, as we drank a L’chayim and broke bread (over two very long challahs!) upon our pre-sunset entry into Jerusalem. We were introduced to the many dichotomies Jerusalem (it’s very name a plural) represents: the Jerusalem on high and the Jerusalem of this world, old and new, ancient and modern, east and west, physical and spiritual … and the list goes on. No doubt we will spend many hours considering the complexity of this holiest of cities through the end of the week.

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After checking in at the hotel in Jerusalem, we met to process our first day’s experiences in Israel. The most common expression of surprise was how cosmopolitan and developed the country feels. It’s a minor miracle we were still awake to share our thoughts, and perhaps even more miraculous that we still had room for dinner!

Early wake-up call as we head to the Kotel for a Bat Mitzvah celebration in the morning.

God, I am so filled up and full!

Laila tov from us all,

Rabbi Craig Scheff

The “long arm” of the OJC

Look, up in the sky! It’s a bird! It’s an F-35! No, it’s OJC on United 84, leaving Newark and headed for Tel Aviv’s Ben Gurion Airport. OJC?! Yes, OJC, where just one month after sending 24 people on a week-long volunteer mitzvah mission, the congregation is sending a delegation of 39 for the 5777 OJC Israel Experience.

Last week, Prime Minister Netanyahu called Israel’s “long arm” longer and mightier with the arrival of two F-35 fighter jets. There is no debating the qualitative advantage these machines provide to Israel for the protection of the Jewish homeland. I like to think of our frequent Israel trips as the long arm of OJC, made longer and mightier with each trip, providing a qualitative advantage to the Jewish identities of those participating in our trips.

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It is remarkable to consider, in a community of 500 households, how many people will represent us in Israel in the year 5777. Between our synagogue trips, college students on Birthright, Conservative Yeshiva or semesters abroad, high schoolers on USY or Ramah summer programs, 8th and 12th graders participating in Schechter school trips, our children making aliyah, congregants visiting friends and families, and individual families taking a 2-week tour, I estimate that at least 120 individuals will touch down in Tel Aviv. It brings your rabbis tremendous naches (comfort/pride) to sense the strong connection that our OJC community shares with Eretz Yisrael. As a factor that heavily influences Jewish engagement and future identification, our Israel connection bodes well for the next generation, despite the widely reported trends to the contrary.

The OJC Israel experience is also one committed to appreciating the nuances of the relationship we share with Israel. Firmly committed to her security and longevity as the Jewish state, we also acknowledge the challenges–particularly the political, religious and social–that Israel faces in maintaining a democratic and pluralistic character and in living up to our Jewish ideals. Our journey will take us back in time to trace forward the progression of the Zionist dream: from the history of Jerusalem (the city of Zion) to the earliest Zionist dreamers, to the British Mandate, to the survival of Shoah, to the founding of a State, to the development of the Negev, to the birth of a start-up nation. We’ll celebrate a bat mitzvah and the holiday of Chanukah, experience a Jerusalem Shabbat, reunite with friends and family, and partner with communities. We’ll learn, feel, struggle and grow. We’ll fly, float, eat, climb, ride, eat, shepherd, plant, eat, sing, package, eat, pray and maybe even jog. I guarantee you, we’ll come back more tired than we left (and perhaps a couple pounds heavier!). We’ll strengthen our understanding, our commitment, our identities and our community.

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This is the OJC Family Israel Experience 5777. And today is Day One. We depart from the synagogue lot today at 12:30pm, only hours from now. Follow us for the next 10 days with our daily blog and Facebook posts.

L’hitraot,

Rabbi Craig Scheff

OJC Mitzvah Mission 2016, Conclusion

The beauty of Jerusalem was on full display this morning, as our running club jogged through the gentrified railway station and the German Colony and the rising sun burned through the early haze to clear the sky. Our first formal stop was the Masorti Kotel, the spot where we are most comfortable praying as a community, and one that has generated much controversy in the last months. The Israeli government has failed to implement legislation, passed last year, that would formally extend the Kotel, its plaza and its security, to the southern end of the western wall. Our presence here is, in part, a stand for what we believe and what we expect from the state we call our Jewish homeland.

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The morning service was participatory and upbeat; Amy Schwartz led shacharit, Linda Varon and Mikalah Weinger read Torah. Most special of all, however, was the moment our group quietly stepped over to the next Torah station at the wall to complete a minyan for a family’s bar mitzvah celebration. When they boy looked up from reciting his blessings, he was shocked to see 23 of us standing around him! And when we started to sing “mazel tov,” we could see the boy’s joy and the parents’ emotion and appreciation. It’s always amazing how the most meaningful moments are often the ones not planned. Add one more beautiful mitzvah to the list of the many fulfilled this week!

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We drove west to Motza, where we visited Beit Yellin, established in 1860 as the first Jewish agricultural settlement outside the Old City. We learned the history and historical significance of this home, now rebuilt and revitalized by the Jewish National Fund. An hour of digging, planting and staining gave us the satisfaction of preserving a piece of our pioneering history and beautifying another natural setting.

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Our closing lunch once again was an emotional time of sharing impressions and highlights, validating our decisions to commit to this unusual and challenging experience, whether for the first time or the eleventh.

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As I sit on the plane anxiously awaiting takeoff, I am looking forward to my own pillow and a restful Shabbat. Leaving Israel, however, is never easy. There is so much work still to be done. That being said, I take solace in knowing that, as the sun sets on this mission, in 4 short weeks I will return with our OJC Israel Family Experience with a group of 39; and in one short year, the sun will rise upon OJC’s 12th annual mitzvah mission, November 12-19, 2017. Join us!

Shabbat shalom,
Rabbi Craig Scheff

OJC Mitzvah Mission 2016, Day Four

Yoav greeted us at Ahava this morning as family, with all his warmth, sincere care and passion, as if we had just come home after a semester abroad. He enthusiastically described the new projects taking place around the village; in particular, a soccer field where children and their fathers typically play on visiting days, accompanied by coach, social worker and therapist. At other times, groups of children play together, observed by the social worker who will then sit the boys down and process their interactions. Brimming with pride, he shared that Ahava had just been awarded another 5-star rating for the beauty of its facility, and a certificate of recognition for its efficient operation as a nonprofit. And he attributes these successes–at least in part–to our OJC contributions and the unique relationship we share.

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So much life, empowerment and hope in a place potentially filled with so much pain. Mikalah spent last evening partying with girls of Ahava, ages 6 to 17, at an opening event for an initiative called the “Girls Project.” It was a night of music, food, fun, and companionship, celebrating healthy relationships and positive self-image. We met with the class of children beginning the process of study towards bar mitzvah and gave them watches donated to us back home. We delivered beautiful artwork from our own Naaseh/USY kids to our host families.

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And finally, we created another beautiful space (with the assistance of the talented staff) that serves, literally and symbolically, as a place of life, growth, fruition and hope.

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That’s what this place is all about. That’s what we want to be all about. And as we finished the day gazing at Jerusalem, we realized that’s what this land of Israel, at its heart, is all about.

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Laila tov,
Rabbi Craig Scheff

OJC Mitzvah Mission 2016, Day Three

Day 3 of our 11th annual mitzvah mission to Israel was graced with a brilliant blue sky and a warming sun, so any work outdoors today was going to be welcome. It was great to be back at Ahava, seeing familiar faces of children and counselors who anticipate our arrival each November, hearing “the group from Orangetown” being acknowledged with familiarity and gratitude, and sweating a little from our physical labor.

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We started the day in “Rob’s Corner,” which we created and dedicated last year in memory of Rob Katz z”l and Danny Klein z”l. Being there today was particularly poignant, given that this date was Rob’s birthday, and this was where he celebrated for nearly the last decade. This home for children “at risk” held a special place in his heart, and Rob was beloved by the administrators, staff and children alike. We quietly prayed, and rededicated our efforts to honor the legacies of 2 beloved people, to stretch beyond our comfort zones and to give freely to others.

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The Ahava stories of resiliency and generosity–those of the children and of their caregivers–continually inspire us; but we have come to recognize that we inspire them as well. The work of our hands can be seen all around the village, and the village administrators have expanded their vision of what is possible. As a result, our projects have become more intricate, artistic and interesting, and the village facilities more beautiful.

 

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Our group broke into pairs to share lunch with the children and their caregiver families, and our experiences in this setting are always quite diverse. Some home settings are quite functional, familial and warm; others exhibit difficult dynamics of disciplining adults and oppositional children. I happened to sit next to a talkative 15 year-old boy who shared with me that, before coming to Ahava, he had been in a residential facility that could not teach him to address his challenges. In contrast, three years at Ahava, along with the loving discipline of his second family, have given him the skills and confidence to overcome his past and to look ahead with a sense of hope.

Tomorrow we return to Ahava to complete our flower gardens, trellises, planting, painting, photography project, bracelet-making and mosaics. We’ll celebrate with, and offer gifts to, this year’s bar mitzvah class. We pray that God will bless the work of our hands so that it–and we–may serve as a legacy to the benefit of others.

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Happy birthday, Rob. Miss you.

Rabbi Craig Scheff